Where were you on World CP Day?

Back to blog10 months ago by Renee
Will overwrite featured video.
Text that reads: There are 17 million people in the world with cerebral palsy I AM #1 World Cerebral Palsy Day Wednesday 5 October 2016
 
Will overwrite featured image.
 

This year we had an exciting World CP Day with more than 2,000 people from 90 countries making their mark on the map. We also received a stream of photos from celebrations, and their stories mostly through social media.  

World CP Day provides the opportunity for all of us to …

This year we had an exciting World CP Day with more than 2,000 people from 90 countries making their mark on the map. We also received a stream of photos from celebrations, and their stories mostly through social media.  

World CP Day provides the opportunity for all of us to celebrate the lives and achievements of children and adults with cerebral palsy. We can also draw attention to the issues that people with cerebral palsy face around the world and showcase the solutions that are creating real change. Check out the links to some of the stories below!

We were excited to have so many different people be a part of the celebration. They flocked from disability services, schools, universities, parent groups, hospitals and sporting bodies. We saw of individuals mark the occasion by wearing green and getting together with their community. The celebrations ranged from family fun days, street marches, conferences, exhibitions, awards, etc. Canada and Poland had many landmark buildings/bridges lit in green. Many of the photos can be found on the World CP Day facebook page (this will be hyperlinked to the facebook page).  

This year the CP: Favourite Words (for child development) poster was a clear winner, so much so that we had it translated into 12 other languages. You can get a copy of the poster here: https://worldcpday.org/wp-content/uploads/2016/09/WorldCPDay_FavouriteWordsPoster_2016.pdf

The stories

Some of the breakthrough projects that are creating real change for people with cerebral palsy are ones in that involve Cerebral Palsy Alliance:

  • Early Detection Guidelines: A team of experts is creating leading-edge international guidelines that are set to revolutionise the time it takes to diagnose CP in very young children. CPA’s Professor Iona Novak and Dr Cathy Morgan have joined doctors and researchers from across the world to create the first ever clinical practice guidelines on early intervention and diagnosis of infants who are either have cerebral palsy (CP) or are at high risk of it. https://worldcpday.org/our-campaign/medical-therapeutic/early-detection-of-cerebral-palsy-international-clinical-guidelines/
  • Bangladesh CP Register: Cerebral Palsy (CP) Registers play a critical role in the provision of accurate data for public health planning and interventions. CPA is supporting the work of Dr Gulam Khandaker whose dreams of a CP Register in Bangladesh are taking shape; the first in a low or middle income country: https://worldcpday.org/our-campaign/medical-therapeutic/gulam-khandaker-bangladesh-cp-register/
  • Cathy Morgan: GAME: A simple but intensive program is the basis of ground breaking research to help improve outcomes for infants with cerebral palsy (CP).  Now that children can be diagnosed accurately as ‘high risk of CP’ as early as three months of age, the program takes advantage of brain plasticity to improve their long term fine and gross motor skills, daily function and adaptive behaviour. https://worldcpday.org/our-campaign/medical-therapeutic/cathy-morgan-game/
  • Cally Tann: ABAaNA:  A successful community-based participatory training program that is creating better futures for young children with cerebral palsy and their families in Uganda. The project is run by Dr Cally Tann from the London School of Hygiene & Tropical Medicine, who has also received support from the Cerebral Palsy Alliance Research Foundation.  https://worldcpday.org/our-campaign/medical-therapeutic/cally-tann-abaana/