Join our CP Quest

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Shannon Clough and her late son Ethan who had cerebral palsy
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CP Quest has been formed to involve people living with cerebral palsy and their families in decisions about CP research now and into the future. Your input is important.

My name is Shannon Clough. I am part of CP Quest and have stepped into the Chairperson role for the committee. When my beautiful son Ethan was born at 26 weeks he was diagnosed as being profoundly deaf and having severe cerebral palsy. I, like so many parents, wanted answers and, even though I have now lost my beautiful boy, I still want those answers for people with cerebral palsy and their families. Cerebral palsy research is the way.

We are people with cerebral palsy, parents of children with cerebral palsy and researchers from Cerebral Palsy Alliance.
I invite you to be part of our research community.

CP Quest aims to:

  • Promote cerebral palsy research to those affected by cerebral palsy and the general public.
  • Provide advice to Cerebral Palsy Alliance’s Research Foundation and Research Institute from the perspectives of people with cerebral palsy and their families.
  • Assist with fundraising for critical cerebral palsy research.

There are two opportunities for you to become involved in CP Quest and help guide CP research now and into the future: the CP Quest Committee or as a Research Partner.

For the terms of reference and to register your expression of interest, head over to our page at

One year ago