Research calling caregivers for interviews about feeding experiences of children with cerebral palsy

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Young boy with cerebral palsy in a wheelchair laughing at something in the distance while his mother looks at him and is laughing too.
 
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 An exploration of caregivers’ feeding experiences of children with cerebral palsy (The CareFed-CP Study)

Researchers at the Western Sydney University and Cerebral Palsy Alliance are investigating the feeding experiences of caregivers with a child with cerebral palsy.

Dr Christine Taylor, head researcher, said that feeding children with cerebral palsy was an important issue they wanted to explore.

“We have seen parents and families struggle with the challenges of feeding their child, helping maintain weight and nutrition, and managing tubes and skin problems whilst trying to get on with the rest of life’s challenges. There isn’t a lot of information or consistent strategies and we want to change this.”

“If we can find out from carers about their experiences and the support they receive or need, we can help to identify where we can best help and assist carers of children with cerebral palsy.”

The information provided may assist in developing strategies to support caregivers of young children with cerebral palsy.

They are calling on volunteers to participate by undertaking an interview via telephone or skype, which should take around 45-60 minutes.

For this study the team are seeking English speaking caregivers 18 years of age and over who have a child with cerebral palsy from birth to 5 years of age.

The research project is headed by Dr Christine Taylor and Dr Jann Foster. Both are neonatal registered nurses who have worked in newborn and child health for more than 30 years. As well as having clinical expertise, they have undertaken other research with babies and children, which included working with Prof. Nadia Badawi AM (Macquarie Group Foundation Chair Cerebral Palsy, Medical Director Grace Centre, Children’s Hospital Westmead).

If you would like more information or wish to volunteer please read the information sheet provided and contact Dr Christine Taylor on 02 9685 9029 or email ch.taylor@westernsydney.edu.au

Approved by the Western Sydney University Human Research and Ethics Committee (H11968) and the Cerebral Palsy Alliance Human Research and Ethics Committee (2016-11-02).